Thank YOU ALL for your prayers because Charlie has been APPROVED to trial an experimental drug!!! I am in shock. This is amazing news. Just to refresh your memory from my last blog post, this drug (BYL719) is a breast cancer drug, but it has not been approved by the FDA for anything at this … More APPROVED

I see you Mama

I’ve been struggling emotionally for the last couple of months. I used to think being a stay at home mom would be amazing . Tough? Yes. But still amazing. Admittedly, in many aspects, it is. And for the record I count my blessings daily that I have this option. My biggest complaint is that I … More I see you Mama

More Eye Surgery

We have spent the last couple of months trying to schedule Charlie’s cataract surgery. For months, Charlie’s ophthalmologist in Green Bay has been saying that Charlie needs cataract surgery in his right eye. Once we felt the pressure in his eye was stable (from glaucoma), the ophthalmologist referred us to Milwaukee for surgery. We were … More More Eye Surgery