It has been 3 months since my last blog. I thought life would slow down (slightly) once Charlie started school, but I was wrong. It was the opposite. This boy keeps quite a schedule: Monday: School 8:10-10:40am (20-30min drive), nap, OT at 2:15pm Tuesday: School 8:10-10:40am, nap, PT at 3:15pm Wednesday: Swimming Class with Grandpa, … More Bifocals, School and Mom’s New Career
Charlie had a successful eye surgery on July 27. His glaucoma specialist performed a laser surgery on Charlie’s right eye to kill some of the fluid that causes pressure (glaucoma). He had planned on covering up some exposed tissue at the top of Charlie’s eye, but once he got in there it was not as … More School, Eye Surgery & Giggles
I’ve been struggling emotionally for the last couple of months. I used to think being a stay at home mom would be amazing . Tough? Yes. But still amazing. Admittedly, in many aspects, it is. And for the record I count my blessings daily that I have this option. My biggest complaint is that I … More I see you Mama
We have spent the last couple of months trying to schedule Charlie’s cataract surgery. For months, Charlie’s ophthalmologist in Green Bay has been saying that Charlie needs cataract surgery in his right eye. Once we felt the pressure in his eye was stable (from glaucoma), the ophthalmologist referred us to Milwaukee for surgery. We were … More More Eye Surgery
Ten years ago, in 2008, I had been working as a reporter for TODAY’s TMJ4 in Milwaukee. I met an individual named Kevin Paluch. He was genuine, selfless and kind. At the time he was president of Geneva National Foundation, a non-profit raising money for organizations within Walworth County that support those with special needs. … More School Dilemma: Public vs. Special Needs
Charlie is now 3-year’s old! He turned 3 on March 12. We celebrated in Orange County, CA during our two-week vacation. We booked an Airbnb in Corona Del Mar for Al’s parents, Al, Charlie & me. Al can work remotely so he worked during the day while the rest of us embraced the sunny weather. … More Charlie’s Dog, Heart and Thyroid
I am thrilled to share that Make-A-Wish is granting Charlie a special wish….a service dog! As many of you know, Charlie turns 3 in a few weeks, but he’s not a typical 3-year old. Charlie does not walk, talk, eat (he has a feeding tube), hold his head up unassisted and he is legally blind. … More Charlie’s Service Dog
We have taken on some new medical challenges, one of which has doctors shaking their heads once again. Charlie was born in March 2015 with an extra thumb and a large birthmark on the right side of his body. Looking back, I guess it’s fair to say that his skin was our first so-called problem … More Thyroid and Heart
I hope that you all had a wonderful Christmas and 2018 is treating you well! Al, Charlie and I traveled to Las Vegas to spend a week with my family. Charlie travels so well. Now that we have to buy him his own seat, FAA regulations require him to sit in his own seat for … More 2018 -a new diagnosis and a new ride
We have lots of exciting Charlie news to share. Where do I begin? Make-A-Wish is in the process of granting Charlie a wish! We met with our two Make-A-Wish volunteers in early November. Their job is to ask us questions to help us determine the best wish for Charlie. After having a hard time answering … More Wheelchair, Make-A-Wish and Glaucoma
